Summer camp
The camp is a regular annual activity for children with haemophilia under the age of 18. The main objective of the camp is to teach the children to give themselves their injections but also to create a social network among them. Usually about 25 children participate in the camp.
Family seminars
The Society arranges two seminars annually: one for parents and children under 7 years and one for parents and children between 7 and 18 years. The seminars include speeches on current issues, debate and exchange of experiences between the participants.
Father-son
The Society arranges a yealy challenging 'guy experience' for boys with haemophilia and their fathers, e.g. a canoe trip spending the night in the nature. The trip is a chance for the fathers and sons to do some ‘male bonding’ without the often over protective mothers attending.
Group of young members in the Danish Haemophilia Society arrange various activities, like going to a concert or taking a trip to a foreign country.
Normally, the group arrange one or two activities per year but the frequency varies.
Young members from the Society have created an international website foryoung people with bleeding disorders. Please visit www.los-bleedos.net.
Elderly people
Twice a year the elderly members from the Society and their wifes/husbands have a chance to meet at special seminars. The group of elderly members are called 50+ and the activities for this group are called 50+-seminars. The seminars offer a good opportunity for exchanging experiences from a long life with haemophilia and talking about current challenges.
Women
Woman with bleeding disorders and carriers are often neglected groups in the haemophilia world. Therefore the Danish Haemophilia Society offers these women a chance to meet and exchange experiences once a year.
Hepatitis C seminar
The Hepatitis C seminar is held once a year for hepatitis C-infected people with haemophilia and their spouses. The seminar focuses on medical and psychosocial aspects of living with haemophilia and hepatitis C.
Hiv-days
The hiv-days are held once or twice per year. Participants are hiv-infected members and their families. The agenda usually holds the latest developments in medical treatment and psycho social themes.
Conference and general assembly
The general assembly is held in connection with a member conference over a weekend. The conference includes plenary sessions and workshops about different issues related to haemophilia. |